Hi I'm Vicki and a mum of 4, my eldest is Jake, he is 11. He was born at 27 weeks, but the size of a 20-21 seeker at just 420g.
At around 10 weeks old he developed NEC and an infection in his blood stream. He was sent to another hospital for surgery, but was too sick for the surgery (we were asked to remove life support off twice that week).
Long story short, he spent 6 months in NICU / SCBU and had a long list of issues. He's doubly incontinent, and we are about to embark on his next chapter and try Bowel washouts.