Rare Disease Day 2026
Rare Disease Day is an important international awareness day that takes place annually on 28 February (or 29 February in leap years). This date was chosen because 29 February is the rarest day of the year. Thousands of rare disease organisations from around the world participate in every Rare Disease Day, representing the nearly 300 million people living with a rare condition globally.
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Genetic Alliance UK is the proud organiser of Rare Disease Day across the UK. The international Rare Disease Day awareness raising campaign is led by rare disease group EURORDIS.
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NEC UK is proud to support Rare Disease Day and raise much needed awareness of Necrotising Enterocolitis. ​Necrotising Enterocolitis (NEC) is a rare disease and is such a devastating disease that requires more research and support. As a charity we continue to drive research, support families and improve care.​ Just because it’s rare doesn’t mean it’s not important!
Please Share our resources and lets raise awareness of Necrotising Enterocolitis together and hope one day there will be a world without NEC!​​
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How you can help
Save our images and reshare across your social media channels. Even easier, simply reshare our social media posts to amplify our voice and raise more awareness!
Tag us in your social media posts so we can engage with your messaging, using the hashtags #necuk #necuktinybowelsmatter #RareDiseaseDay #rarequity #rarediseaseday2026
Head over to the Rare Disease website for More Information and resources Rare Disease UK