NEC Awareness Day!

May 17th Is NEC Awareness Day!

Help us to raise much needed awareness of this devastating condition.


NEC UK is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC).

UK Charities General fundraising has been hit very hard by the COVID-19 pandemic. Thousands of fundraising events have been cancelled and many charities, particularly smaller ones like ours NEC UK, are struggling to maintain services because of this huge reduction in income. This impacts all sectors of NEC UK’S Services.


Our organisation is parent led and primarily offers support to families affected by the condition at any stage of their journey.

In addition to family support our objectives are to support further research and studies into NEC, to raise awareness of NEC while also developing good relationships with experts, care providers and other organisations to give NEC a platform to be heard and improve the outcomes for babies affected by Necrotising Enterocolitis and their families.






Here’s how you can get involved in raising awareness:

  • Order your NEC Awareness Ribbon & NEC UK Merchandise at our Store

  • Join our mailing list , Subscribe to our blog

  • If you’re on Facebook, use the NEC UK FB Frame for NEC Awareness Day

  • Get creative Light up your window Blue or Green, create a fantastic window display “Because Tiny Bowels Matter” and send us your photos! Resources available from Our Website.

  • Take part in our colouring challenge, colour in a teddy bears picnic, movable bear or one of our Charity buntings. Downloads Available at : https://www.necuk.org.uk/nec-day-downloads Send your picture in to: https://www.necuk.org.uk/family-sharing-form We have a little treat for all entries so please remember to send in your address details.

  • Rock Painting: Raise awareness by painting rocks, hide these, display these or you may just want a small gift to give to your family to honour a loved one.

  • Blue or Green: On May 17th, don't forget to support NEC UK by wearing blue and green in honour of #NECDay It can be anything from clothing to ribbons to hats to sparkly green and blue lights , if you want to wear your blue and green before please do and be sure to share a picture with us we would love to see them.

  • Share your photos and stories of how NEC has impacted your life, Our goal is to empower families and clinicians, researchers etc to join the international community that is working to build a world without NEC by sharing videos through Flipgrid. Please visit Flipgrid to view the current entries from NEC UK Trustees, family members and entries from our Medial Advisory Panel. https://flipgrid.com/Berrington3655 The Flipgrid accessed code: berrington3655, Password: NECUK2020

  • Make a Donation to NEC UK

  • Create a Facebook fundraiser or donate to The MAY 50K For NEC UK

  • Follow NEC UK on Facebook, Instagram & Twitter and help us build a #necday Twitterstorm on May 17!




Please share with us how NEC has impacted your life. Tag us on Facebook, Instagram and Twitter use the hashtags: #NECUK#preventNEC#NECday#Becausetinybowelsmatter

Do you have a NEC story you want to share? Tell us here

You can join our movement by following us on Twitter, Facebook, Instagram, subscribing to our email list, and making a donation. You can also read more stories from families impacted by NEC on our Family Stories page.


#preventNEC #necuk #becuasetinybowelsmatter #necday #necawarenessday #may17th

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